ClusterInfo

Patient survey

This short survey helps us understand whether our treatment guides are making a real difference. Thank you for your help!

ClusterInfo is a non-profit project. We can only keep going if we can show donors the guides help patients. Five minutes of your time is the best way to help us reach more patients.

  • The survey takes less than 5 minutes to answer.
  • If you're unsure about a question, approximate answers are fine.
  • All your answers are anonymous.
  • Please only answer this survey if any of our guides had an impact (however small) on how you treat your cluster headaches.
1. What type of cluster headache do you have?
2. Which of the treatments in our guides did you try?

If you've tried multiple treatments, please answer the survey separately for each treatment.

3. Without ClusterInfo.org, how likely is it that you would have successfully used this treatment for your attacks?
4. Please tell us a bit more about how the guide helped you.
5. How long have you been using this treatment?
6. What other treatments are you currently using alongside the guide?
7. Before starting this treatment, how many attacks at pain level 9 or above (on a 1–10 scale) did you typically experience per week?
8. How long did those ≥9/10 attacks typically last?
9. After starting this treatment, how have your ≥9/10 attacks changed?

For example: how quickly you noticed changes, side effects you encountered, things you tried before that didn't work, anything about the guide that was confusing or missing, or how your cycle pattern has changed.