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Patient Survey

This short survey helps us understand whether our treatment guides are making a real difference. Thank you for your help!

The survey takes less than 5 minutes to answer.
If you're unsure about a question, approximate answers are fine.
All your answers are anonymous.
Please only answer this survey if any of our guides had an impact (however small) on how you treat your cluster headaches.

1. What type of cluster headache do you have?

EpisodicChronicNot yet diagnosed or unsure

2. Which of the treatments in our guides did you try?

If you've tried multiple treatments, please answer the survey separately for each treatment.

3. Without ClusterInfo.org, how likely is it that you would have successfully used this treatment for your attacks?

Very unlikelyUnlikelyLikelyVery likely

4. Please tell us a bit more about how the guide helped you.

I wasn't aware of this treatment at all before finding the guide.

I was aware of this treatment, but I didn't know how to use it safely/effectively before reading the guide (and I did after reading).

I had some information about this treatment, but the guide gave me the exact information I was missing to get started.

I had access to the relevant information about this treatment, but the guide gave me the impulse to get started.

The guide was helpful, but I probably would have figured it out without it anyway.

Other

5. How long have you been using this treatment?

6. What other treatments are you currently using alongside the guide?

Please share more details about your treatment(s) (frequency, effectiveness, etc.) (optional)

7. Before starting this treatment, how many attacks at pain level 9 or above (on a 1–10 scale) did you typically experience per week?

8. How long did those ≥9/10 attacks typically last?

9. After starting this treatment, how have your ≥9/10 attacks changed?

10. Is there anything else that might help us understand your experience? (optional)

For example: how quickly you noticed changes, side effects you encountered, things you tried before that didn't work, anything about the guide that was confusing or missing, or how your cycle pattern has changed.